What is the best way to support someone with lupus?

Some steps you can take today to better support your loved one with lupus.

1. Educate yourself about lupus. Work together with your loved one to better understand the disease.
2. Work on healthy communication.
3. Create a care file.
4. Develop a daily care plan.

What is it like living with someone who has lupus?

Having lupus can make everyday life challenging. When your lupus is active, symptoms like joint stiffness, pain, fatigue, confusion, or depression can make simple tasks difficult — and sometimes impossible. Since these symptoms aren’t visible, the people around you may have trouble understanding how you feel.

How does lupus affect family?

As the person with lupus, you may feel guilty about not being able to do the things you once did. You may feel unhappy about the accommodations others in your family have to make on your behalf. Your brothers and sisters may feel jealous of all the attention you are receiving.

Should you date someone with lupus?

Dating someone with lupus means you’re not only in the back seat, but you’re effectively in the trunk. The Experience of having a girlfriend with lupus means being a caretaker and a nurse when your girlfriend isn’t feeling well enough to make it out of bed.

Does lupus make you sleep a lot?

Inflammation: Any time your body is experiencing excess inflammation, such as during a lupus flare, you will feel more tired.

How can I help my girlfriend with lupus?

There should be a discussion about what each person is losing because of the lupus and how they can comfort each other and rewrite their lives together. “Talk, talk and more talk. Tell them your thoughts, hopes and fears and be sure to listen when they do the same.”

Does lupus cause divorce?

Unfortunately, reports suggest that within 5 years of the diagnosis of lupus, nearly half of married women are divorced. This results from many of the emotional changes discussed above and a coping problem on the spouse’s part.